Meet the team of pediatric specialists at Arkansas Children's
Hospital who provide comprehensive care from birth through adolescence for children
born with cleft lip/palate
What is Cleft Lip/Palate?
Cleft lip/palate is one of the most common birth defects in the United States,
occurring once in about every 750 births. A cleft is an opening which results
from the failure of the two sides of the upper lip or palate to grow together
during the early weeks of pregnancy.
Although the cleft is surgically repairable, there often are accompanying problems
involving speech, hearing and teeth that need to be treated. Because no two clefts
are alike, each child needs treatment designed to meet his individual needs.
How Does the Team Work Together?
The Cleft Lip and Palate Program at Arkansas Children's Hospital (ACH) incorporates
a multidisciplinary team, with each member specialized in pediatric care. An
important advantage of the team approach is that the team's professionals are
in direct and continuous communication about your child's care. Each team member
is fully aware of your child's specific needs and progress and is able to make
recommendations for care which are consistent with those given by other team
members. The goal of the team is to ensure that care is provided in a coordinated,
consistent manner with the proper sequencing of evaluations and treatments with
the framework of the child¹s overall developmental, medical and psychological
needs.
The Members of the Team
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The Cleft Lip and Palate Team |
The Pediatric Otolaryngologist/Facial Plastic Surgeon - These
specialists are responsible for surgical closure of the cleft and related operations
which your child may require. If your child has ear problems which cause hearing
loss they will be monitored by an ear, nose, and throat specialist.
The Audiologist - Since children with cleft palate have an
increased risk of ear problems, ongoing audiological surveillance is necessary.
The audiologist provides appropriate assessments to monitor hearing status so
that diagnosis and treatment can be made for any cleft-related hearing problems.
The Dental Specialists - The dental specialists include the
pediatric dentist, orthodontist, oral surgeon, periodontist and prosthodonitist. These specialists
keep track of your child's dental growth and development, and provide information
on oral hygiene and dental treatment that may be necessary due to the cleft.
The Geneticist - The geneticist is available to discuss how
clefts of the lip and palate occur and to answer questions about the risk of
recurrence with future pregnancies. Later, this specialist can help your teenager
understand the cause of a cleft and advise him or her about individual circumstances.
The Speech Pathologist - The speech pathologist will provide
you with information about typical speech development along with suggestions
for stimulation speech when your child is very young. Later, the pathologist
will evaluate your child's speech and, if necessary, make referrals for therapy
closer to home.
The Social Worker - The clinical social worker is available
to meet with the family to assist in the psychosocial and emotional aspects
of cleft lip/palate. This specialist is aware of services available in the community
to which the family can be referred for information on medical coverage, financial
assistance, and support groups/services.
The Clinical Nutritionist - The nutritionist assists with any
early feeding difficulties and monitors the child¹s nutritional intake.
This specialist also provides follow-up of weight gain and height/weight parameters.
The Registered Nurse Practitioner - The nurse practitioner
is available as a contact person to provide information and ensure that parents
understand their child's health needs, treatment plan and follow-up. This specialist
assists with the child's presurgical readiness and post surgical recovery and
provides instructions for home care.
The Team's Record
The cleft lip and palate team is one of the many programs at ACH which provide
high quality, individual service to children with special health care needs.
Since 1978, nearly three-fourths of all children born in Arkansas with cleft
lip/palate have been treated at ACH. The program is headed by Dr. Lisa Buckmiller*
as a part of the hospital's Department of Otolaryngology. *The cleft lip and
palate team provides comprehensive, coordinated care to children with clefts
and is dedicated to meeting each child's individual needs from the time of birth
until the child no longer needs our services.
The "Game Plan": Your Child's Treatment
Both the medical treatment and the emotional care your child will receive at
ACH are geared to the special needs of each child and his or her family. The
course of surgery and treatment planned for your child begins with an initial
evaluation that takes place shortly after birth. This initial evaluation is
one of the most important steps in the care of a child with a cleft. Not only
does it increase the chances of a successful outcome, but it allows you the
opportunity to have your many questions answered as quickly and as accurately
as possible. Evaluations will continue after the initial one, usually at six-
to 12-month intervals.
Cleft Clinic
The Arkansas Children's Hospital Cleft Clinic meets the first Wednesday of each
month at 9 a.m. During this clinic each child is seen by each member of the cleft
palate team, and all team members meet after the clinic to coordinate their recommendations
for care and treatment.ACH provides an intensive, comprehensive treatment and
follow-up program which follows cleft patients from initial corrective surgery
through speech development to final cosmetic surgery.
Referrals
Children may be referred for care to the cleft clinic by physicians, speech therapists,
teachers, families, guardians or others concerned with their general growth and
development. To make an appointment at the cleft clinic, contact Sherri Gunnell
at 501-364-7544 or via e-mail at gunnellsherril@
uams.edu. Dr. Lisa Buckmiller, director of the cleft palate program, also
may be reached at 501-364-7546 or via e-mail at buckmillerlisam@uams.edu
for consultation and referral.
Contact Info/Referrals
ENT Office: 501-364-1047
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